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National and International
Resources for the Best in
Hepatitis Information and Support...

Hepatitis Foundation International has assembled an extensive list of resources to help you to find the information and assistance you need when dealing with and trying to understand hepatitis in its many forms.

Helpful Websites and Organizations


PHARMA/Drug Specific Info & Financial Assistance
1-855-769-7284 Gilead: SOVALDI (includes Financial Assistance and RN support)
1-855-565-9746 Janssen: OLYSIO (includes Financial Assistance)
1-855-280-1650 Vertex: RN support – INCIVEK
1-866-939-4372 Merck: RN support – VICTRELLIS
1-866-422-2377 Genentech Pegyasys HBV, HCV
1-888-941-3331 Pegasys medication assistance
1-877-734-2797 Pegasys Patient assistance
1-800-226-2056 Gilead – US Advancing Access
1-888-437-2608 Merck: Be In charge program
1-800-727-5400 Merck Patient Assistance Program
1-866-363-6379 Pegintron assistance ACT program
1-888-668-3393 AMGEN/Kadmon  INTERFERON & RIBIVARIN
N/A
Daily Med: Current Medication/
Drug Information (FDA/NIH/NLM)

 

FINANCIAL ASSISTANCE (Co-Pay, Medication, Specialty Pharmacies)
N/A
NeedyMeds.com
1-800-675-8415
The HealthWell Foundation
1-866-316-7263
Patient Access Network
1-800-366-7741
Patient Services Inc.
1-888-477-2669
Partnership for Prescription Assistance
1-800-799-8765
Managed RX
1-800-444-4106
TogetherRX Access
1-877-968-7233
NORD – Patient and Family resources
1-800-997-7739
RXresource.org
1-877-546-5779
Avella Specialty Pharmacy
1-866-437-8040
HealthStatRX Specialty Pharmacy
1-888-782-8433
Walgreens Specialty Pharmacy
1-877-509-4310
Grubbs Specialty Pharmacy (DC)
1-888-292-0744
BioPlus Specialty Pharmacy Prescript Assist
1-800-237-2767
CVS/Caremark Specialty Pharmacy

 

TESTING, CLINICS, INSURANCE, LEGAL RESOURCES, FEDERAL & STATE
1-877-435-7443
HCV Doctor Referral, Support Group, Clinics, Testing
1-703-647-7427
National Association of Free Clinics
N/A
NeedyMeds: No/LowCost/Sliding Scale Clinic Locator
1-877-464-4772
Finding Health Center/Clinic
1-800-638-0742
Hill Burton - Free or Lowcost Health Care Clinic (None in AL,IN,MN, NV, ND,NE,RI,SD,UT,WY)
N/A
HCV testing sites
1-954-692-0450
State Listings for Doctors, Clinics, Support Groups, Testing
N/A
Health Insurance Search
N/A
Legal Aid by State
N/A
Legal Services Corporation (government site)
1-800-532-5274
Patient Advocate Foundation (legal)
1-800-232-4636
State Coordinators, General Viral Hepatitis Information
N/A
Health Resources and Services (HHS)
N/A
Disability and other state resource info
N/A
Insurance, Healthcare Centers, Medicaid
N/A
US Nat’l Library of Medicine, NIH
N/A
CDC National Prevention Network-Hepatitis-links, immunization info
1-888-INFO-FDA
FDA (US Food and Drug Administration) Patient Network

 

CLINICAL TRIALS INFORMATION
1-800-411-1222
Clinical Trials
  Studies of Clinical Trials Map
1-866-219-3440
Centerwatch – clinical trials
N/A
Guide to Clinical Trials for HCV Patients
N/A
MedPage Clinical Trial locator
N/A
Trials Finder/Genetic Alliance

 

GENERAL INFORMATION
1-215-489-4900
Hepatitis B Foundation
1-800-445-3235
HepBSmart (Gilead)
N/A
HBVadvocate
1-800-891-5389
Nat’l Digestive Disease Clearing House – HBV
N/A
FaceHepB (BMS)
1-818-636-5624
BlueFaery: Adrienne Wilson Liver Cancer Association
1-877-435-7443
Hotline – HCV – The Support Partnership
1-800-465-4837
Hotline – HCV – American Liver Foundation
1-877-435-7443
HCV Doctor referral, support  group, clinics, testing – The Support Partnership
1-800-891-5389
Nat’l Digestive Disease Clearing House - HCV
1-800-727-5400
All About Hep C (Genentech/Merck)
N/A
Hep C Defined (BoeringerIngelheim)
N/A
C The Virus (AbbVie)
1-888-532-2494
BettertoknowC (Vertex)
N/A
HCV general info & Drug Pipeline
N/A
Hepatitis C New Drug Research Blog
N/A
WebMD Hepatitis Center
1-888-894-6361
United Network for Organ Sharing (UNOS)
N/A
Liver Cancer AND LIVER TRANSPLANT INFO
N/A
Your Guide to Hepatitis (magazine/newsletter)
N/A
What I need to know about Hepatitis

 

VACCINATIONS, TRAVEL  INFORMATION AND  FINANCIAL ASSISTANCE
1-651-647-9009
Vaccine information (part of Immunize.org)
1-651-647-9009
Immunization info
1-800-465-4837
Destinations & vaccine recommendations
N/A
Vaccine Education Center
1-800-727-5400
A & B Vaccine help - Merck
1-888-825-5249
A & B Vaccine help - GSK

 

VETERANS AND MILITARY SUPPORT
1-540-255-7015
Veterans & HCV
1-540-255-7015
Dept of Vet Affairs, Inquiries, Information
N/A
Dept of VA Affairs – Hepatitis C
N/A
Veterans – Health Care Treatment Centers
N/A
2013 HCV pamphlet

 

PHYSICIAN ASSOCIATIONS
1-202-429-5179
American Association for the Study of Liver Diseases (physicians)
1-301-263-9000
American Gastroenterologocal Association
1-800-465-4837
American College of Gastroenterologists

 

OTHER
DIET
1 Hour Webinar: Diet, Nutrition, & Exercise with Liver Disease, (ALF-Dr. Melissa Palmer)
TATTOOS
Should I Tattoo?
  NIH recommendations on tattooing
CO-INFECTION
HIV & Hepatitis
ALTERNATIVE THERAPIES
National Center for Complementary and Alternative Medicine
 
Natural Medicines Comprehensive Database
  Herbs at a Glance
  Dietary Supplement Label Database

 

STATE SPECIFIC ORGANIZATIONS & SUPPORT GROUPS
1-877-435-7443
State Hepatitis Resources (help4hep.org partner)
N/A
Asian American & Pacific Islanders Hepatitis B
N/A
California Hepatitis Allliance – county resources
N/A
California – Asian Liver Center
1-800-522-hepc
Colorado
202-480-1354
DC/MD/VA/WV – Grubbs Specialty Pharmacy
240-498-0887
DC – Greater DC VH Support
N/A
Delaware Valley (SE PA/DE)
1-850-245-4300
Florida
N/A
Hawaii
1-866-437-4377
New Jersey – HCV Association
917-612-2731
New York – Hepatitis C Mentor and Support
N/A
New York City Hep B & C taskforces
1-215-489-4900
Pennsylvania
1-206-732-0311
Washington State
N/A
Caring Ambassadors: support groups
N/A
Support groups, Doctor referrals pipeline, updates
N/A
Hepatitis C New Drug Research and Liver Health
N/A
Support groups Hepatitis-Central
202-480-1354
HCV Tele Support Group (hosted by Grubbs NW Specialty Pharmacy RN’s) 3rd Wed/month

 

INTERNATIONAL ORGANIZATIONS
N/A
International Alliance of Patients’ Organizations
N/A
Hepatitis C Australia
N/A
Canada Health
N/A
Canadian Liver Foundation
N/A
European Assoc. of Study of Liver Diseases
N/A
HepatitisInfo.org – HBV - Europe
N/A
HepCTrust (United Kingdom)
N/A
World Hepatitis Alliance

 

ONLINE FORUMS AND SUPPORT
N/A
HCV Support
N/A
HEPCnet Forums
N/A
HepatitisCNews
N/A
Med Help
N/A
HepC Nomads Forum
N/A
Daily Strength Hepatitis C Support
N/A
Hepatitis-Central
N/A
Hep C Friends
N/A
Hepatitis C Web Warriors-Yahoo Groups
N/A
ONLINE Patient support forum-viral hepatitis
N/A
Online Patient Forum
N/A
Treatment Diaries
N/A
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