The Hepatitis Foundation International’s (HFI) patient-centric mission provides a firm foundation on which will accomplish our research goals in the next 3 to 5 years. Accomplishing these objects will result in a reduction of hepatitis and diseased affecting the liver in HFI’s target populations by 50% in 5 years. HFI realizes the potential to greatly improve the lives of our niche hard-to-reach, hard-to-treat populations which can take place through:
- Effective prevention strategies
- Linkeage to care
- Care delivery coordination
- Case management
- Treatment adherence for optimal health outcomes
HFI Research Objectives:
1) Establish collaboration across federal agencies working to prevent and treat liver diseases, liver cancer, hepatitis, diabetes, renal and cardiovascular diseases, hepatitis C and HIV coinfection.
2) Detect the need within specific populations infected with viral hepatitis before progression of disease.
3) Encourage patients to participate in clinical trials that focus on increasing adherence to drug treatment regimens. This includes encouraging racial and ethnic groups, hard-to-reach, and disadvantaged populations in an effort to gain data from all groups.
4) Evaluate the effectiveness of outreach for viral hepatitis, coinfection, and, liver disease for health care delivery services for HFI’s target populations.
5) Improve data collection to adequately capture all populations effected by hepatitis. Data collection should include subsets of data within ethnic groups, including evaluation of non-adherence to treatment plans in racial groups.
6) Conduct behavioral research to explore effective community based interventions and the overall effectiveness of outreach programs.
7) Implement disease mapping to assist in faster, more efficacious drug development. HFI’s Research Study and Survey referral service – Researchers may submit a personalized online research survey or study listing and link to be included in the Studies monthly, e-newsletter to constituents interested in clinical trials, research studies, or surveys that cut across liver disease, hepatitis, HCV/HIC Co Infection, HIV/AIDS, Diabetes, Cardiovascular and Renal Diseases.
Hepatits Patient Registry
The Hepatitis Foundation International (HFI) is a strong proponent of accelerated health research to hasten cures for hepatitis and other liver related diseases. The goal for the Hepatitis Patient Registry Network (HepPRN), is to collect self-reported data on a patient’s health along the health care continuum.
HFI will provide full disclosure about all research information and will fully enforce its privacy policy to protect individuals, patients, families and caregivers.
Our best hope for finding new treatments and raising awareness is YOUR participation in HepPRN! Whether you are affected, a caregiver, or related to someone who is or was affected, your information could be the key. Please take a few moments to answer a few questions today.
National Cancer Institute
The National Cancer Institute invites you to contribute your ideas on one or more of the cancer research topic areas, or under the Other Exceptional Opportunities category.
Community input is critical to the success of the National Cancer Moonshot Initiative. Members of the scientific community and general public are encouraged to submit ideas for advancing progress against cancer.
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HFI Research Initiatives
For more than 20 years, Hepatitis Foundation International (HFI) has been and continues to be a strong proponent of accelerated health research to hasten cures for hepatitis and other liver-related diseases.
HFI believes that engaging more individuals in patient-centered research and supporting scientific discoveries will greatly add to preliminary data collected over the years to promote best practices in more efficient patient care.
HFI is partnering with key entities to develop innovative, cutting-edge tools to provide patient-centered research to assist individuals, patients and their health care providers to make more informed decisions and move to optimal health outcomes.
Watch the video for more information on HFI’s research initiatives:
